Care of Students with Epilepsy or Seizure Disorders
Care of Students with Epilepsy or Seizure Disorder is now law: Section 1006.0626, of Florida Statutes. From the advocacy and efforts of HB 173 & SB…
Care of Students with Epilepsy or Seizure Disorder is now law: Section 1006.0626, of Florida Statutes. From the advocacy and efforts of HB 173 & SB…
Epidiolex®, a cannabidiol (CBD) oral solution by Greenwich Biosciences, is now indicated for the treatment of seizures associated with Lennox-Gastaut Syndrome (LGS), Dravet Syndrome (DS)…
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WUFT - September 27, 2017 Florida residents with epilepsy could receive a little more aid in the coming weeks if they were affected by Hurricane…
Written by: Darlene Pistocchi, Community Correspondent at Hollywood Gazette - June 27, 2017 Held at Hollywood’s North Beach Park, more than 800 walkers participated in…
Channel 7 News - January 4, 2017 MIAMI-DADE COUNTY, Fla. - At 5 years old Bruno has a rare form of epilepsy, which can cause…
FloridaPolitics.com, Scott Powers December 7, 2016 Behind barbed-wire fences and armed guards, an unmarked, nondescript block building invisible from the road features countless surveillance cameras, a walk-in safe,…
WJCTNews Radio, November 1, 2016 EFOF Community Resource Specialist, David Grisset and Dr. Syed Asad, of Universal Neurological Care, discuss epilepsy, the foundation and November…
BY DANIEL CHANG - Miami Herald, October 31, 2016 Open enrollment begins Tuesday for the Affordable Care Act insurance exchange at healthcare.gov, with consumers facing…
October 20, 2016 - Sun Sentinel Don your finest purple hat for a morning of fun to benefit the Epilepsy Foundation of Florida. The "Purple…
Home Magazine Gainesville - October 5, 2016 How One Woman Overcame the Isolation of Epilepsy with the Help of the Epilepsy Foundation of Florida Over…
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Epilepsy Foundation of Florida discussing all things epilepsy on The Buzz, featuring Jacksonville Community Resource Specialist David Grissett [embed]https://youtu.be/ILQSOPhV-2A[/embed]
Tallahassee Teen Magazine, June 2016 Strides for Seizures, Strides for Friendship Featuring Molly McCann, daughter of Board Member, Stephanie McCann Click Here to Read the…
May 19, 2016- The Huffington Post A little boy diagnosed with a rare epilepsy syndrome now has doctors around the world — and supportive Facebook…
By Warren Manger –Daily Record May 28, 2016 BRITAIN'S Got Talent star Wayne Woodward has revealed how he suffered a terrifying epileptic fit moments after…
April 29, 2016 Since November 2015, a pit bull named "Chloe," remained homeless at the Ridgecrest Animal Shelter in Kern County, California. Sadly, the friendly…
May 30, 3016 – The Huffington Post One morning, in 2012, my wife and I were viewing the footage from a CCTV camera, setup in…
By Jesse Buchanan – Meriden Record- Journal June 8, 2016 When the speaker stopped working on an iPad used by the Connecticut Children’s Medical Center…
EFOF Staff Members Mary Gomez and Marisol Valdes represent the Foundation on CNN Espanol! [embed]https://youtu.be/xsnkKPIivSU[/embed]
By Kristi Krueger - Local News 10 June 07, 2016 HOLLYWOOD, Fla. - Spider-man was a lucky guy – one bite from an eight-legged creature…
In 2014 a Florida ballot initiative allowing medical use of marijuana fell two points short of the 60 percent vote required for a constitutional amendment.…
February 12, 2016 - Epilepsy Society The US Food and Drug Administration has approved the first 3D-printed pill called Spritam levetiracetam. Manufactured by American pharmaceutical…
Moms are leading the grassroots effort for medical marijuana in Florida. Moms like Renee Petro. "It may not be perfect, but it's better than what we…
February 5, 2016 – The Huffington PostAlicia Gonzalez, CEO & Editor at 24/7 Modern Mom, writer, speaker, and advocate. My daughter was just two years…
March 14, 2016 – The New York Times Epidiolex contains almost pure cannabidiol, a component of the marijuana plant that does not make people high.…
March 22, 2016 – Foxnews.com Matthew Fontaine saved his mother's life when she had a seizure. A 4-year-old Massachusetts boy is being hailed as a…
March 23, 2016 - Orlando Sentinel Two years ago, the medical marijuana constitutional amendment was on the ballot. Even though a majority of Florida voters…
Article and Information courtesy of the Epilepsy Foundation of America. Visit their website to learn more. What to do about the medical use of marijuana (cannabis)…
Researchers at the University of Veracruz (UV), on the west coast of Mexico, have studied the neurobiological link between autism spectrum disorder (ASD) and epilepsy…
University of California, Berkeley, researchers have shown that chronic stress generates long-term changes in the brain that may explain why people suffering chronic stress are…
Epilepsy is estimated to affect more than 500,000 people in the UK, yet a recent survey of 2,000 British adults revealed 74% of us do…
In a strange case, a woman developed "hyper empathy" after having a part of her brain called the amygdala removed in an effort to treat…
Magnesium has an important role in the work of the cardiovascular system, nervous system, muscles, kidneys, liver, the glands that secrete hormones and brain. It…
Dr. Farrah Mateen, a 33-year-old neurologist at Massachusetts General Hospital, stands next to him, preparing to collect a set of readings through the headset on…
March 2014, New York Times Once every three or four months my son, Sam, grabs a cookie or a piece of candy and, wide-eyed, holds…
Dania Soto's story is a testament to the incredible strength of the human spirit and the power of support in overcoming obstacles. Diagnosed with epilepsy…
Curtis Lamb had his first seizure at age 3 and was diagnosed with epilepsy shortly thereafter. He experienced absence, tonic/conic, and complex partial seizures on…
Did you vote for Miles? Miles Levin is a friend of EAFLA and a filmmaker with epilepsy, seeking to make a difference for the epilepsy…
Josh has been a member of Epilepsy Alliance Florida since 2014. Over the years, with the help of his case manager, Josh was able to…
Tessa Bowdren came to Epilepsy Alliance Florida after being referred by her doctor. She was diagnosed with epilepsy at the age of three. When she…
Young filmmaker and entrepreneur Kaitlyn August to receive 2022 Clayton Feig Youth Award by Epilepsy Alliance Florida. She was chosen in recognition of outstanding and…
Willie is a 49-year-old man residing in Fort Lauderdale, Florida. He has been receiving services from Epilepsy Alliance Florida since 2013. Willie found out about…
Peter Bessette has been with Epilepsy Alliance Florida for about 10+ years cumulative since 2008. Peter was referred to Epilepsy Alliance Florida by his physician…
This is Reef, he is a 3-year-old boy with 3 brothers. At a very young age, he would have over 200 seizures a day. It…
written by: Steve Schale (board member of Epilepsy Alliance Florida) When I was a kid growing up in Illinois, like most boys in my town,…
Thank God I found them! My Name is Martin Latino, I started having febrile convulsions when I was a child, not 100% sure but I…
Bailey started having seizures when she was 6 years old and for years she and her family thought she had them under control. But then,…
My Voice Matters This is Karmen Cummings. She has been a client with Epilepsy Alliance Florida since 2007. Karmen Cummings like many had no idea…
Joana Fernandes is a 56-year-old female, who began experiencing complex partial and grand mal seizures at the age of 25 years old. The client lived…
When Chelsea was about 18 years old when she started drinking and partying. She was at her grandparents’ house one night and started having nocturnal…
Written by: Manuel Rosario I was born in Dominican Republic and all my seizures happened there. When I was about 13 years old (1993), I had my first…
Meet Denis Zepeda, a client with Epilepsy Alliance Florida for over eight years. Denis was diagnosed with epilepsy in his home country Nicaragua at the…
Meet Chariyah Smith... She was referred by a social worker for UM Epilepsy Center where she was recently diagnosed with epilepsy. She is being monitored by UM’s…
My name is Tina and this is the story of my Epilepsy journey. I have had Epilepsy since I was 11 months old. I had…
Emmit Donaldson and his family became part of the Epilepsy Alliance Florida family via research on the internet by his mother and through a neurologist…
Living with Epilepsy is like living knowing a thief might come in the night. You do not know what time it will strike, but you…
My name is Moriah, I am a 24 year old living with epilepsy and I've been part of Epilepsy Alliance Florida for over 1 year.…
My name is Leslie Taleno, I have two wonderful daughters. Ava (14) and Mia (13). Mia is a bit different from other kids her age. She…
Patrick Rosser came to EAF referred by a friend. He faced the following problems of not knowing anything about epilepsy, misdiagnosis and not feeling part…
Two months before her 5th birthday Eriona was diagnosed with absent seizures. Eriona is a beautiful, sweet and caring 12 year old girl. Anywhere she…
Deja McDonald, like so many others with epilepsy, felt lost in a confusion about her condition and how to properly treat it to live her…
This is Pedro and his family. “I remember the day I came in to the West Palm Beach office of Epilepsy Alliance Florida. I was…
Luis Avalos has been a client of Epilepsy Alliance Florida for over 9 years. He was referred to Epilepsy Alliance Florida by family court for…
by: Jillianne Swaby My name is Jillianne I am 30 years old and I have been epileptic since 2011. From the time I was born…
Marcelino Brown is a 62 year old man who has been with Epilepsy Alliance Florida since 2013 when he experienced his first seizure due to…
The Edmerson twins came to Epilepsy Alliance Florida through the Telemed program. Both Joey and Jordan suffer from Absence seizures. The seizure frequency varies and…
This is Jane with her grand kids today. From the time she was a child, she struggled with grandmal seizures, as a result of her…
by: Alexandra Markovich Dear Lil’ Me, There is so much I wish I could tell you, but I am going to try to stick to…
Jesus Sanchoyerto was diagnosed with epilepsy at the age of 12. He has been part of the Epilepsy Alliance Florida family since 2009. Jesus's parents…
by: Victor Guimares I was diagnosed with epilepsy when I was 9 ½, I was put on Dilantin and seizure free for two years, then…
by: Melissa Kavolius I was 17 and in High School when I had my first seizure in 2006. I had a really stressful week at…
Barry has been living with epilepsy since he was 13 years old. He recalls having daily seizures and that it took a while for him…
Paul Rodriguez is a 32 year old male, who began experiencing grand mal seizures at the age of 10 years old. Client attended Miami Children’s…
7 years ago, Yamilet had her first seizure. “It came out of nowhere” she said. “I lost consciousness, I don’t know where I was…” Prior…
by: Alexandra Markovich The year of 2020 was not just the year I struggled. It was the year I struggled, my neighbor, my co-worker, and…
Samantha's Story: When I first reached out to Epilepsy Alliance Florida I was trying to navigate life after high school and around 2017 I started…
Ersel Linton recently joined Epilepsy Alliance Florida back in May 2020. Ersel feels he has received so much support in such little time. He was…
We are living in confusing and unsettling times. Many of us are trying our best to avoid leaving our homes to venture out into the…
Seizures Since Birth Many of us face challenges and difficulties in our lives. Claudia Medina has been living with Epilepsy since birth. Before she came…
Dylan Scott came to Epilepsy Alliance Florida needing medical and prescription services. Dylan is a 27 yr. old male who suffers from epilepsy. In 2015,…
Paulina Diaz is a 50 year old female, who began experiencing seizures at the age of 12 years old. She experienced tonic – clonic, complex…
My name is Sabrina Foust and I was diagnosed with Epilepsy in 2nd grade at years of age. I found out about Epilepsy Alliance Florida…
During this time of uncertainty there’s one thing that is certain, and it’s that Mercedes Medina can count on Epilepsy Alliance Florida for her continued…
Maria Jose Castro is a 9 year old female, who started experiencing seizures at the age of 7 years old. Maria was born in Bogota,…
I was diagnosed with epilepsy at around 18 years old. It was right after a car accident. During the car accident and got whiplash and…
Imagine being on the highway when you get a flat tire or your engine fails. The frustration of waiting for roadside assistance as you are…
David has been with Epilepsy Alliance Florida since 2014. At his medical appointment, the neurologist mentioned to him that his epilepsy was as a result…
It was 2015 and Ninfa was living in Naples, she was receiving ongoing neurological care for her epilepsy. However, she was worried about her move…
My daughter, May Robinson, had an accident of Feb 2019 at only 5 months old which left her in the hospital with a severe brain…
La perspectiva de una madre... "Soy la mamá de Juan José Rodríguez y quiero con el corazón trasmitirles a través de nuestra historia toda la…
I’m not sure where to even start. Fourteen years ago, epilepsy invaded our lives. We had no knowledge of or connection to anyone who had…
La perspectiva de una madre "Mi hijo es un rayo de sol, sonriendo en todo momento, amable con todos, con solo amor para compartir. Nunca…
When I first came to EF, I was having a lot of issues not being able to sleep at night. Knowing my son may or…
Lindsay is a 25 year old resident of Boca Raton, FL. She was diagnosed with epilepsy at the tender age of 20 months old. Her…
This is Brittany. She is 22 years old and has been with Epilepsy Alliance Florida EAF since she was 17 years old. After moving out…
Abel Gonzalez Veranes has been a part of Epilepsy Alliance Florida since 2014. He was referred by a friend after losing his Medicaid and no…
When I first came to the Epilepsy Foundation (now Epilepsy Alliance Florida) I had no insurance and didn't know how I would pay or get…
Hamill Cruz joined Epilepsy Alliance Florida in May of 2019. Hamill is a veteran who served in the Marine Corps. In June of 2017, Hamill…
As someone with personal experience with being an adult living with epilepsy and living at home with my parents. There are some pros and cons.…
My name is Jamie Moody and I am the proud mother of a very special little girl. I would like to take a few minutes…
Client Mateo Caicedo is a 12-year-old boy, whose family relocated from Colombia in May of 2015. Mateo started experiencing seizures at the age of 4…
Ramona Rodriguez has been part of Epilepsy Alliance Florida since 1997, after coming from another country she has found the support she’s been seeking. Ramona…
My name is Justice Bartley and I am currently a graduate assistant on the men’s basketball team at the University of Miami. Thank you to…
Rakshanda Khan has been a member of Epilepsy Alliance Florida since she was in Elementary school. Her father first brought her to what was then…
Maegan Haganey is 14 years old and is going into 9th grade at her local high school in her hometown of Inverness, FL. She attends…
Robyn is a 33 year old female who was 23 when she had her first seizure. She wasn’t diagnosed with epilepsy until she turned 24.…
When I was first diagnosed with epilepsy, I did not know I had epilepsy because nobody used that word. From having a tumor removed from…
Stefano Leon became a client with Epilepsy Alliance Florida in 2005, he was a senior in high school, struggling to maintain his grades. Like many…
When I was 12 years old I was diagnosed with epilepsy. I originally found refuge with the Dan Marino Center. I was treated using Depakote…
Most of us know of a single parent or two who have to face the daily challenges alone. Now add the additional challenge of having…
Hi, my name is Jamie Beauchamp and I have had gran mal seizures since about 5 years old. Growing up with seizures has been quite…
Lucia Ortiz, an immigrant from Cuba has now been living in the US for nearly 10 years. More than half of that has been seizure…
My name is Dona and I was diagnosed with Epilepsy at the age of 18. From teenage hood to adulthood, I went to multiple Doctors…
Story by The Johnston Family Addyson Lynn Johnston was born November 5, 2007, a whole two minutes older than her twin sister, Ansley. Addy is…
On February 21st 2018, my life changed forever, I had my first seizure. I was helping a friend hold her project together, while she welded…
If I can describe my son, Vincent Solomon in one word it would be #mykidhero! I know every mom and dad feels that way about…
By Giulia Covella Appreciate the little moments in life. That’s what my three-year-old son has taught me. Francesco was born, full-term and completely healthy, on…
When Kathy first reached out to EF, she had just had 2 back-to-back seizures which caused her to spend a week in the hospital. She…
My Name is Cheyeanne Crosby and I am a 21-year-old with Epilepsy, learning disabilities, and Emotional conditions, and other medical conditions. For the first few…
Nothing Is Impossible The sun was a huge blazing balloon on the sky, burning down on the soccer field. I started to feel a dizzy…
It was a typical pregnancy, every doctor appointment normal and great. She was born totally healthy; absolutely no issues at all. She met her milestones…
By: Emily Daycock I was 10 months old when my seizures started after a bout of Respiratory Syncytial Virus (RSV). Though not supported, it seemed…
My name is Zohe Hernandez. I was born in Puerto Rico 38-years ago. At the age of nine, my family moved to Miami looking for…
In February of 2002 while traveling on my way home from work I was at a red light and was struck by a vehicle. Little…
Epilepsy Alliance Florida (EF) has been by my side since 2011 after loosing my job due to my seizures and side effects. I was diagnosed…
Have you ever heard a story that gave you chills down your spine? A story that you couldn’t help but feel as if it was…
During my childhood and throughout adulthood, I have had trouble with my parents, mentors, and acquaintances understanding my epilepsy. Some called my seizures fits/tantrums or…
By: Kerrie Pruitt, on behalf of her son, Joshua Pruitt At the age of six, Joshua had his first seizure. He had complained of a headache,…
My name is Elizabeth Perez. I am 34 years old. The day that I was supposed to be born, my mom started having contractions so…
Sunday, April 20, 2014, at around 7 PM, was a game changer for me. I thought that I was suffering from the flu or some…
Meredith Pence doesn't know what life is like without seizures. When she was six months old, her first tonic clonic seizure occurred, and they have…
When I first came to the Epilepsy Foundation of Florida, I definitely didn’t know what I had, at all. I also didn’t have any help…
Written by Heather Kidd Hi, my name is Heather, and I would like to take you on a journey through my life with epilepsy. Yes,…
When the Epilepsy Foundation of Florida told me they wanted to publish my story in their issue at the beginning I was hesitant. I asked…
I had my first seizure when I was 13. It was a Petit Mal, meaning I did not collapse but was not aware or in…
Robert was only 18-years-old when he passed away from epilepsy. I will never forget that early Thursday morning when I was awoken to the loud…
Home Magazine Gainesville - October 5, 2016 How One Woman Overcame the Isolation of Epilepsy with the Help of the Epilepsy Foundation of Florida Over…
My name is Kimberly Harding and I live with Intractable Epilepsy. I was formally diagnosed in February 2001, after hitting my head while snowboarding without…
By: Aimee Young Alaina Young is my teenage daughter who just happens to have epilepsy. Like many others, my husband and I began to notice…
Tallahassee Teen Magazine, June 2016 Strides for Seizures, Strides for Friendship Featuring Molly McCann, daughter of Board Member, Stephanie McCann Click Here to Read the…
I was two years old when I was diagnosed with Epilepsy. To say the least, I’ve had some life changing moments, but it’s also taught…
David was diagnosed at the age of 2 ½ with Petit Mal and Absence Seizures after having a Grand Mal Seizure one morning sitting next…
My name is Justin Tyler Millares; I am a senior at Mater Lakes Academy High School. I live with my parents and younger sister. We…
"I was born 13 weeks premature and had a stroke before birth which caused my Epilepsy. Before the third grade, my family and I were…
Hayden is a normal 13 year old boy with a big smile, who enjoys basketball, video games and music. He has a great sense of humor…
Jonathan Dale is a remarkable young man. He has intractable epilepsy which means that his seizures are not controlled by medication. Despite having daily seizures,…
"I have always lived what you might call a very typical and normal lifestyle. I come from a strong, supportive family and I value my…
I was diagnosed with epilepsy my first semester at college when I was 18 years old. Before then I thought I was invincible. I didn’t…
"My name is Jay Hennessy, I was diagnosed with Post Traumatic Epilepsy (PTE) from a Traumatic Brain Injury (TBI) in 2010, which marked the beginning…
Molly McCann was thirteen-years-old when she was diagnosed with epilepsy. She recently shared her story, which is relatable to so many young people affected by…
Richie Terrell is an amazing example of how EFOF works with legislators to help our members and veterans. EFOF has helped Richie along his journey…
You never forget the first time. My wife and I stood helplessly as a debilitating seizure took over our young daughter's defenseless body. In that…
There’s no way to adequately describe how terrifying and disturbing it is to witness your child having a seizure. How helpless you feel. How angry…
With the matinee-idol good looks of a young Clooney, Carlos Gimenez sits listening to his guest in the subtly appointed conference room of the public…
Life was always a struggle. At age seven, I was outside playing with my friends when suddenly I had a grandmal seizure. After I was…
My name is Margaret Gregory I was diagnosed with epilepsy January 2009 at the age of 30. The seizures came as a surprise to my…
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