This page is for all audiences. You can find information and resources for specific audiences by clicking on one of the links below:
Learn More about Epilepsy
Other Epilepsy Websites
Disability Resources
For Employers
Related Government Health Resources
Downloadable Apps (Medications Control)
My Medical: http://www.mymedicalapp.com
Mobile App to Empower Young Adults with Special Healthcare Needs (DE UCEDD)
Social Security Benefits (English/Spanish/Creole)
Legal Assistance Resources
Guardianship and Other Decision-Making Alternatives (English/Spanish/Creole)
Youth Leadership, Self-Advocacy, and Volunteering Opportunities Supporting Resources
National Youth Leadership Network
Self Advocacy: Find the Captain in You! (video from the Pacer Center)
Adult Model of Care/Transfer to Adult Providers
Finding and Using Adult Health Care
Planning to Move from Pediatric to Adult Care? Here’s How They Can Differ
System Differences Between Pediatric and Adult Health Care
National Center for Cultural Competence
The Transition to Adult Health Care For Youth with Special Health Care Needs
Education and Transition
National Secondary Transition Technical Assistance Center (NSTTAC)
Employment and Transition
Institute for Educational Leadership
National Collaborative on Workforce and Disability for Youth
Federal and State Transition Resources
Federal Transition Initiatives
Association of Maternal & Child Health Programs (AMCHP)
Foster Care and Transition
Foster Care Transition Toolkit
Guardianship and Decision-Making
Turning 18: What it Means for Your Health
Cumplir 18 años: Qué significa para tu salud
Got Transition Webinar: Understanding Guardianship and the Alternatives for Decision Making Support
Guardianship and Alternatives for Decision-Making Support
National Resource Center for Supported Decision Making
Health Insurance
HealthCare.gov Young Adult FAQs
Health Insurance Help Guide for College Students
National Disability Navigator Resource Collaborative
Independent Living and Transition
Independent Living Research Utilization Program (ILRU)
Institute for Community Inclusion (ICI)
National Center on Health, Physical Activity and Disability
Mental Health and Transition
Transition Mental Health Service Provider Core Competencies (Portland State)
Transition Service Provider Competency Scale (Portland State)
Promoting Positive Pathways to Adulthood: Pathways Transition Training Toolkit (Portland State)
Transitions to Adulthood Center for Research (University of Massachusetts)
Policy Recommendations
2018 AAP/AAFP/ACP Clinical Report on Transition
2011 AAP/AAFP/ACP Clinical Report of Transition
“Standards for Systems of Care for Children and Youth with Special Health Care Needs”
Relationships, Sexuality, and Pregnancy Prevention
You’ve Got a Friend: Supporting Family Connections, Friends, Love, and the Pursuit of Happiness
Feature Issue on Sexuality and People with Intellectual, Developmental and Other Disabilities
Sexuality Education for Children and Adolescents with Developmental Disabilities
National Campaign to Prevent Teen and Unplanned Pregnancy
Self-Care
5 Steps to Prepare for Health Care Transition
You’re Not a Kid Any More Ages 12-14 (Envisioning a Future)
Now That You’re in High School Ages 15-17 (Age of Responsibility)
When You’re 18, You’re in Charge of Your Health Ages 18+ (Age of Transition)
The Medical ID Feature on iPhone Health App
A guide describing how to set up your Medical ID app successfully on both Apple and Android phones.
La caracteristica Medical ID en la aplicación Salud de Apple
A guide describing how to set up your Medical ID app successfully on both Apple and Android phones (in Spanish)
The Medical ID app for Android phones
Instalación de la característica Medical ID en teléfonos Android
Questions to Ask Your Doctor about Transitioning to Adult Health Care
Preguntas para realizer a tu medico sobre la transición hacia la atención médica adulta
Becoming an Adult: Taking Responsibility for Your Medical Care
Moving into Adult Health Care: A Guide for Parents
How to Advocate for Your Health and Health Care
Communicating with Doctors and Other Health Care Providers
Keeping in Contact with your Health Professional
NY Transitions: Skills for Moving from Pediatric to Adult Care
Special Education
Health Care Transition Readiness Assessment for Students with an IEP
Evaluación de la preparación para la transición de la atención médica para estudiantes con un IEP
SSI Benefits and Transition
Social Security Administration (SSA)
Supplemental Security Income: What Happens to My SSI When I Turn 18?
Youth and Family Organizations
A Family Toolkit – Pediatric to Adult Health Care Transition
Health Care Transition Timeline for Youth and Young Adults
Health Care Transition Timeline for Parents and Caregivers
Got Transition’s National Family Transition Advisory Group
Military Parent Technical Assistance Center
National Federation of Families for Children’s Mental Health
The Native American Parent Technical Assistance Center
Parent Center Hub (National Center for Parent Information and Resources)
Youth Action Council on Transition (YouthACT)
Youth and Family Transition Stories, Webinars, and Videos
Parent Guide to New National Transition Report
Young Adult Health Care Transition Social Media Toolkit
The Americans with Disabilities Act and the Health Care System: Experiences of Young Adults
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