Psychological and Employment Issues
Understanding the Psychological and Employment Landscape for Those with Epilepsy
Navigating the complexities of epilepsy goes beyond managing the physical symptoms; it encompasses the psychological impacts and employment challenges that come with the condition. In this segment, we delve into the emotional journey that often accompanies an epilepsy diagnosis, the strategies for optimizing medical visits, and the significance of neuropsychological evaluations. We’ll also explore avenues for support, the intricacies of joining the workforce, and the rights and resources available to those with epilepsy. Our aim is to shed light on these often unspoken aspects and provide guidance to empower individuals and families as they adjust to life with epilepsy, promoting a path to resilience and fulfillment.
Members of Epilepsy Alliance America have been collectively supporting people with epilepsy for decades through support services, information, education, advocacy, and public awareness. As a result, the Alliance provides services to approximately 1 million Americans living with Epilepsy.
Epilepsy Alliance America (EAA) welcomes all organizations serving people with epilepsy and seizures to join our collaborative network as we work together to strengthen epilepsy services in local communities across the country.
EAA is a nation-wide network of community-based epilepsy organizations who are dedicated to confronting the spectrum of challenges created by seizures through the promotion of independence and quality of life for people with epilepsy and their families. The Alliance was founded in 2018 by eight leading grassroots epilepsy organizations who are unified in their mission to provide direct support to people with epilepsy, and the people who care for them.
Members of Epilepsy Alliance America have been collectively supporting people with epilepsy for decades through support services, information, education, advocacy, and public awareness. As a result, the Alliance provides services to approximately 1 million Americans living with Epilepsy.
Navigating Psychological and Employment Challenges in Epilepsy
Emotional Impact of Epilepsy Diagnosis
It’s quite common for individuals diagnosed with epilepsy to experience emotional upheaval, including periods of depression and anger. This is a normal response to a significant life change. With time and counseling, many learn to adapt and lead fulfilling lives again. However, it’s important to note that the incidence of depression and suicidal thoughts is higher in those with epilepsy compared to the general population or those with other chronic conditions. Thankfully, most patients respond well to treatment, which can include low doses of antidepressants.
Maximizing Doctor Visits
To make the most of medical appointments, preparation is key. Be open about your physical, mental, and social well-being, and report any recent seizures. Keeping a detailed seizure log and a list of medications can be very helpful. Draft questions beforehand and strive to learn as much as possible about epilepsy. A good relationship with your doctor, characterized by clear communication, is essential, and bringing someone with you to appointments can ensure that you fully understand and follow your doctor’s recommendations.
The Role of Neuropsychological Evaluations
A neuropsychological evaluation is crucial for assessing cognitive function and detecting any brain impairment or mental illness. It helps in evaluating how epilepsy may have affected cognitive abilities, mood, behavior, and quality of life. If cognitive functions are preserved, this type of evaluation may not be necessary.
Finding Support and Community
Support groups can be invaluable for families dealing with epilepsy. They can be found through resources like Epilepsy Alliance Florida, local health organizations, or online communities. For personalized help, consider reaching out to your healthcare provider or starting your own support network.
Employment with Epilepsy
Individuals with epilepsy can certainly be employed and perform most jobs, depending on how well their seizures are controlled. While the unemployment rate among those with epilepsy is higher, those who are employed often demonstrate excellent safety records and productivity. It’s advisable to avoid high-risk tasks and to inform employers about the condition, especially if seizures are not fully controlled. The Americans with Disabilities Act (ADA) provides legal protection against workplace discrimination.
Dealing with Discrimination and Disability Claims
If you encounter discrimination in the workplace, try to resolve it with your employer first. If unsatisfied, seek advice from Epilepsy Alliance Florida or contact the Equal Employment Opportunity Commission (EEOC) for further assistance. For disability claims, the Social Security Administration (SSA) evaluates each case based on the frequency and severity of seizures and compliance with treatment before granting benefits.
